Autism Awareness Day

Today is Autism Awareness Day.

Autism is quite a complex disability. Many people say "if you've met one person on the autism spectrum, you've met one person on the autism spectrum," because it presents in a wide array of symptoms and severity amongst those that are diagnosed with the developmental disorder. Just over a year ago, it was published that 1 in every 68 births in the US resulted in a child with Autism Spectrum Disorder. Wow, that is a lot of children. I surely hope as research continues, we will find an answer to decrease that number and best support those who struggle with its symptoms, but in the meantime, the closest I can do to evoke change is to speak out and spread awareness. 

For those on the spectrum, early intervention (EI) greatly supports a positive trajectory of symptom management and future quality of life; children who receive EI have a much higher chance of "catching up" in their development by gaining critical social/emotional skills and cognitive gains at a young age.  (Read more about early signs here.) I know this firsthand, as I have seen my sister Erin advocate and work hard to provide early intervention for my nephew Gabriel since the ripe age of two. He is now eight years old and doing well. Behavioral, occupational, speech, and physical therapy, as well as special education and medical intervention have all been stepping stones in providing my nephew a manageable and joyful experience throughout his boyhood. At one point, Erin thought Gabe might not ever say, "I love you," to her and now they say those words to each other every day-- and he tells me, too!  As many families know, those that have the experience of a loved one on the Spectrum, there are always times of setbacks and continued challenges, but overall for our dear loved one, intervention has noticeably shed a difference on his life, thanks to my fighting Sister who has always been aware. 

The more we share about the disability, the sooner more people will be aware of the signs and symptoms in babies, toddlers and children that may need the necessary tools to aid in prevention of more severe symptoms and worsening outcomes of ASD.

For more information about Autism, please visit Autism Society. On behalf of my nephew Gabe and Autism Awareness Day, Zach and I will be making a donation to the local Center for Autism Research at CHOP. To join us in our support for Autism Awareness Day, we would be obliged for your donation as well, thank you!

 

An Open Heart Through Infertility

After returning home from a long Christmas vacation up north, Z and I started this year off with fireworks (literally) and feeling like new people. We made it through NYE this year without any puffy eyes and it was beautiful! 

After meeting with a doctor for a second opinion in December, as well as reviewing our status with our current doctor here in Miami, we changed our treatment protocol going forward. This January we moved off of attempting IVF, what would have been the fourth time, for a few reasons. Back to IUI - sigh. Though, IUI is also pretty slim in our favor, it is our best shot right now with what we are working with.

This week we learned our January IUI treatment was unsuccessful and we were really bummed, but not surprised. We will get back into another round of treatment come March, but in the mean time, we are headed to Jersey to be with my Mom on her birthday and celebrate the Eagles in the Super Bowl. It's my birthday month, too and we are venturing on a weekend cruise to the Bahamas - my first cruise! It'll be March before I know it! So, happily I have a lot of greatness to occupy me and enjoy over the next 20 some days. If there is one thing I do not take for granted, it's life itself. I take every day, one step and breath at a time and I am so grateful for every breath and step that I take.

In the midst of taking a short break and pause in treatment, I continue to be consumed by my daily thoughts and feelings revolving around our journey. It has been incredibly difficult to decide to move away from IVF & ICSI. It's hard to know that what originally seemed to be the best and maybe end all solution for us, is not a solution much at all. Not today, anyhow. We know in our heart that parting from this for now, and possibly forever, is what we need to do. I can't change my ovaries or egg count. It is devastating to know our best option for a biological child at the moment is IUI. As a couple experts have advised, it appears I was just born this way. Though, unfortunate and beyond frustrating, it's our normal to accept, like any disease a person battles to live with and deal with. Moving away from IVF has immensely affected the outcome of my life, and truthfully is the most lonely I have felt thus far in our struggles. As our reality continues to narrow our path, I have sought comfort in faith knowing that what is meant to be, will work itself out to us eventually. That being said, it doesn't make any of this any easier along the way. We have been presented with options of donor eggs, and donor embryos and adoption - all things we have devoted so much time scrutinizing, but for now, we are continuing on the skinny little path we have in front of us, until we feel it's time to branch off and explore an unchartered territory. I promise myself that my heart is open to whatever God's plan may be. 

For anyone that is reading this and going through infertility struggles, I wanted to share something that someone shared with me. It grants me some solitude and peace each night before I go to bed. I focus my daily infertility prayers on one thing. It provides me with focus and connection to something that feels healing. Below is a list of 31 days of prayer that has aided me throughout these tough times. Thank you for following along in our journey. It helps me to feel less alone and I hope it does the same for you. You are not alone, we are not alone, even when it feels that way. xo RCN

  1. CLARITY
  2. COMFORT
  3. COMMUNITY
  4. CONFIDENCE
  5. CONTENTMENT
  6. COURAGE
  7. DISCERNMENT
  8. ENDURANCE
  9. FAITH
  10. FREEDOM FROM FEAR
  11. FREEDOM FROM JEALOUSY & ENVY
  12. FOR FUTURE CHILDREN
  13. FOR GOD'S GLORY
  14. GRACE
  15. GRATEFULNESS
  16. HOPE
  17. INTEGRITY
  18. JOY
  19. MERCY
  20. TO OBEY
  21. FOR OTHERS
  22. PATIENCE
  23. PEACE
  24. STRENGTH
  25. FOR SUFFICIENT FINANCES
  26. TRUE BELIEF IN GOD'S PROMISES
  27. TRUST
  28. WISDOM
  29. WISE DECISIONS
  30. OUR MARRIAGE
  31. OUR SPECIFIC SITUATION
 

Championship Cupcakes

What better way to get into the football spirit for this weekend's upcoming NFC and AFC championship games, than by decorating and getting all fancy with some colorful cupcakes? A perfect treat and activity to do with the kiddos while you're staying warm and cozy inside! All you need is a box of cake mix, icing, food dye, piping bags + tips and a colorful assortment of fan favorite sprinkles and cupcake liners. Oh, and a printer, scissors, tape and toothpick for the logo picks! Pretty self explanatory there ;)

I will be rooting for the Eagles in the NFC (obvi) - the matchup I am really excited about. The Birds have a tough game come Sunday when they face the Vikings, another household favorite team, being that Zach's fam is from Minnesota. Zach says "I want them both to win." Well, that's not possible, sorry Z, but I guess the good news is that either outcome, someone will be happy in our house when it's all said and done. The cupcakes should help with that, too. xo RCN